The Kiserem Epilepsy awareness foundation is a non-profit making organization that aims to create awareness of people with Epilepsy. Kiserem Epilepsy awareness foundation is committed to addressing the needs of people living with epilepsy in a holistic and integrated manner.
Kiserem Fondation was established in Kiambu, in 2016 by Fred Kiserem after he was diagnosed with epilepsy while working in Iraqi. After returning back in Kenya, he decided to start a Foundation for epilepsy to create awareness about epilepsy in the community after learning for himself about the rejection, misinformation and social myths regarding epilepsy in the society. Many people confuse epilepsy with witchcraft, demon possession, a worm in the brain and they often think it is contagious and God’s punishment. Instead of going for reliable medical treatment, 80% of Kenyans makes use of the herbalist (Daily Nation, April 2009).
Only 20% of Kenyans with epilepsy take reliable Anti-Epileptic Drugs (research KEMRI, 2008) and only 1 in 5 people living in Kenya have access to Epilepsy medications and treatment. This hinders them to equally participate in society. They are often excluded from school, work, church and other social activities. A major challenge of people living with epilepsy is to stand up for themselves in the community. People living with epilepsy reported physical abuse from members of their household, sexually abused and not be taken care off, many have been abandoned.
Fred Kiserem founded the "Kiserem Epilepsy Awareness Foundation" after he was diagnosed with epilepsy while working in Iraq. He decided to start a program in Kenya to help create awareness about epilepsy in the community to assist those suffering from the disease in society by fighting both myths about Epilepsy and to fight the low levels of medication and care available to people living in Kenya.
Our Founder Fred Kiserem believes "Epilepsy should receive healthcare priority in Schools and other learning Institutions. Need to encourage parents, relatives, friends, public and private sectors and NGO.s to get involved in the local activities of the Global Campaign against Epilepsy. Elimination of discrimination against epilepsy in all spheres of life, particularly in schools and at work places."
He hopes to achieve this buy working towards these objectives:
a) To build an association in which PWE, their relatives and guardians are empowered and participate in advocacy and lobbying for their rights in achieving dignity and equal opportunities.
b) To create awareness among PWE, their relatives, health workers, opinion leaders and the community so that they can understand epilepsy and are able to support PWE.
c) To build networks and alliances through which Kiserem Epilepsy awareness foundation can advocate for the rights of PWE.s.
Vision Statement: Bringing focus and solution on epilepsy and mental illness.
Mission Statement: To overcome epilepsy and mental illness aspect in our community.
At Kiserem Foundation, we accomplish our mission through adhering to the following core principles and values:
We deliver our program with truth and openness and know we must remain accountable at all times. Everything we say and do shows that we are open and clean in our words and deeds.
We do everything from the heart. Our work inspires and is inspired by our personal stories and the stories of the communities we serve. ACTION We continually strive for concrete results through concrete action.
We believe the solution requires all of us to play a role and that each role